» Batten Disease Information Page - Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
» Batten Disease Support and Research Association - BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
» Nathan's Battle - Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.
» Sacha's Story - Personal story of a young girl in the UK, includes journal, blog and information about the disease.
» The Luke and Rachel Batten Foundation - Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.
» The Natey Foundation - Information for parents and families of Battens victims.
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