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Personal Pages
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» Alpha1 Antitrypsine Deficiency  - One man's perspective and journey with A1AD and a list of links and other resources from the internet.
» Amelka's Page - Amelka was born in Warsaw, Poland with a complex of congenital anomalies. Photos, history and contact. [English/Polish]
» Ashly's Skeletal Dysplasia - A mom describes her daughters disorder which is thought to be a metabolic disease similar to mucopolysachharisdoses. Also links to other related sites.
» Caleb's Courage - A baby's fight with MPS I, Hurler Syndrome. Information on the disease and links to other children fighting disease.
» Joy's Page - Personal account about a daughter having Opitc Nerve Hypoplasia, Septo-Optic Dysplasia and had either a Congenital stroke or has schizencephaly.
» MCAD Angel - Dedicated to raising awareness of the genetic disorder known as MCAD deficiency and the importance of early detection.
» Maddy's Page - The story of Madison Wigglesworth who has hurler syndrome. Includes photo album and links to informative sites.
» Mowat-Wilson - Discussion site for mowat-wilson syndrome. Includes a links page, photos, a community page and a discussion area.
» Robert Kenneth Picklesimer - Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project.
» Story of Robert Purkis - A small boy's health problems, possibly Leigh's Syndrome, and how his parents have helped him improve his quality of life.
» Taryn's World: About Switches - Personal page for kids and parents about genetic disorders, especially mannosidosis.
» XXXXY Syndrome - Information on this rare chromosomal abnormality.
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Last Updated: 2007-02-09 04:25:45
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