» Gretton Homes - Information about the organization that offers residential care for people with Prader-Willi Syndrome.
» PWS Notes - Designed to provide useful background on Prader-Willi Syndrome (PWS) for parents and to organize medical information that may be helpful for future research directions.
» Prader-Willi Alliance of New York - Represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population.
» Prader-Willi Syndrome Association (USA) - Characteristics include hypotonia, insatiable appetite, obesity if food intake is uncontrolled, hypogonadism and incomplete sexual development, developmental delays, variable degrees of mental retardation or functional retardation, short stature (adult)
» The Foundation for Prader-Willi Research - A non-profit group of volunteer families, friends and researchers aiming to raise funds for research into finding treatments.
» The New Jersey Chapter of the Prader-Willi Syndrome Association - Includes news, important dates, fund raising, maps and links.
» The Prader-Willi Syndrome Association (UK) - Information and resources about this chromosomal disorder.
» Williams Syndrome and Prader-Willi Syndrome - Diagnostic assessment, selected treatment services and opportunities to participate in research from the Yale University Child Study Center.
|
|